Love, Laughter & Friedreich's Ataxia
Writing a blog about this subject has become a bit of a no-brainer. We’ve received quite a few messages asking about how, and when Dan decided to start using a wheelchair. When you’re diagnosed with a degenerative condition, the thought of eventually becoming a wheelchair user is probably one of the scariest and most overwhelming …
Something a bit crazy happened a few months ago…. Dan and I were asked to give a talk at Naidex, for the charity Ataxia UK. For those who don’t know what I’m on about… Held at the NEC in Birmingham, Naidex is Europe’s most established trade, professional and public event dedicated to the care, rehabilitation …
On the run up to Rare Disease Day this year, I realised that I haven’t actually done a blog solely on Friedreich’s Ataxia (FA). When people ask about the condition that Dan has, it’s sometimes hard to know what to tell them; FA has so many different effects and symptoms, and they can vary quite …
Wheelchair Rugby: It turned out, that instead of the other players, Dan just ended up tackling his own emotions, thoughts and physical limitations.
As an ‘able-bodied’ person, I’ve had a lot of people presume that dating someone in a wheelchair is dull for me. I’ve often had to set the record straight; I’m not Dan’s carer, neither of us need any pity- we’re having an amazing time, and we have a healthy relationship! In time for Valentine’s Day, …
Having a disability doesn’t mean that someone has NO abilities! So, from driving and working, to sex and gigs, I want to let people know how disability affects Dan and our lives together.
The good, the bad, and the ugly… Dan and I met in April this year, and we’ve already made a lot of amazing memories. When I really didn’t expect to, I fell completely in love. As much as I’d like to keep the blog exclusively positive though, I wouldn’t be being honest in my aim …
A weekend in the Big Smoke London bound… On Saturday 29th September Dan and I headed down to London with his sister Kirsten, and her partner, Ben. We were going for the London Tattoo Convention and planned to visit to the British Museum too. Kirsten is an incredible tattoo artist and the weekend was also …
From the moment that Dan and I started dating, people have asked me what it’s like to date someone who has a disability. I’m going to use this blog to try to answer some of those questions, starting with the ‘big ones’. “What’s it like dating someone in a wheelchair?” This isn’t hugely different to asking ‘What’s …
As the fastest zip line in the world, and the longest in Europe, Velocity 2 promised us ‘a truly unique and exhilarating experience’ with ‘breathtaking views’. And it didn’t disappoint… We went for our adrenaline adventure at Zip World, Penryhn Quarry, North Wales, on 15th October. I was originally booked to do the zip line …