Love, Laughter & Friedreich's Ataxia
Uber claim that they are ‘always the ride you want’. They say ‘Request a ride, hop in, and relax.’. They make it sound so easy, convenient and practical. Unfortunately, our recent experience with Uber was uber unpleasant. We’re left feeling that they are uber unhelpful, uber unreliable and that their policies surrounding disability discrimination are uber unclear.
Where the challenge begins… When looking for a new home, what are a lot people’s considerations? What do they want… what’s on their wish list? A kitchen breakfast bar or island, period features, a nice fireplace, or a south facing garden? No matter the budget when buying a home, everyone will have an idea of …
Why aren’t allergies taken more seriously? What are the potentially disastrous consequences of complacency, lack of education and poor attitudes towards allergies?
Writing a blog about this subject has become a bit of a no-brainer. We’ve received quite a few messages asking about how, and when Dan decided to start using a wheelchair. When you’re diagnosed with a degenerative condition, the thought of eventually becoming a wheelchair user is probably one of the scariest and most overwhelming …
Something a bit crazy happened a few months ago…. Dan and I were asked to give a talk at Naidex, for the charity Ataxia UK. For those who don’t know what I’m on about… Held at the NEC in Birmingham, Naidex is Europe’s most established trade, professional and public event dedicated to the care, rehabilitation …
On the run up to Rare Disease Day this year, I realised that I haven’t actually done a blog solely on Friedreich’s Ataxia (FA). When people ask about the condition that Dan has, it’s sometimes hard to know what to tell them; FA has so many different effects and symptoms, and they can vary quite …
Wheelchair Rugby: It turned out, that instead of the other players, Dan just ended up tackling his own emotions, thoughts and physical limitations.
As an ‘able-bodied’ person, I’ve had a lot of people presume that dating someone in a wheelchair is dull for me. I’ve often had to set the record straight; I’m not Dan’s carer, neither of us need any pity- we’re having an amazing time, and we have a healthy relationship! In time for Valentine’s Day, …
Having a disability doesn’t mean that someone has NO abilities! So, from driving and working, to sex and gigs, I want to let people know how disability affects Dan and our lives together.
The good, the bad, and the ugly… Dan and I met in April this year, and we’ve already made a lot of amazing memories. When I really didn’t expect to, I fell completely in love. As much as I’d like to keep the blog exclusively positive though, I wouldn’t be being honest in my aim …